Ebie's Story

Published March 2015

The Faces and Facts of Disability / Stories / Ebie's Story

When I was driving to work one day [at a hospital emergency room], I began to feel a little ill. By the time I got to work, I could hardly get out of my car. Luckily, a colleague came by, saw me sitting in my car and that I was not feeling well, and got somebody out of the emergency room to come down and take a look at me. That's how I ended up being a renal dialysis patient - they found out that my kidneys weren't working.

I was very active, extremely active. I was into a lot of different things. Very active with my grandkids, very active with my daughters, very active in the community. Part of my job was helping kids to make adjustments in the hospital, and that's what I did. I did that very well. And not only that, it's not only kids in the hospital but kids in the community.

During a typical day, I get up in the morning around 7:00, I get ready, I dress myself. I cook my own breakfast. I'm not such a great cook, but I do it. I wait for my bus to pick me up and take me to dialysis. The bus comes, I go to dialysis, and I stay there maybe about 30 minutes before they call me into the room. They hook me up, and then I'm there for five hours.

My life without Social Security would mean that I could not afford renal care. The health care that I am currently receiving, I couldn't afford it. That's very important. Social Security provides a lot of stuff that people don't know about. It's probably the best thing that ever happened in terms of providing services to people in need. And not only the best thing that ever happened, but it has saved so many lives because people who utilize it can live - and be able to provide for themselves better. And be able to live a high quality of life.

You're talking about quality of life here. Some people don't know what quality of life is. But quality of life is everything.