Compassionate Allowances Outreach Hearing on Early-Onset Alzheimer’s Disease and Related Dementia

Chicago, IL - July 29, 2009

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9:00 - 9:30 a.m.

Opening Statements

  • Michael J. Astrue, Commissioner of Social Security Administration
  • Marie A. Bernard, M.D., Deputy Director, National Institute on Aging (NIA), National Institutes of Health (NIH)
  • David A. Rust, Deputy Commissioner for Retirement and Disability Policy, Social Security Administration
  • David Foster, Deputy Commissioner for Disability Adjudication and Review, Social Security Administration
  • James F. Martin, Chicago Regional Commissioner, Social Security Administration

9:30 - 10:30 a.m.

Overview of Early-Onset Alzheimer’s Disease and Related Dementia

  • Harry Johns, MBA, President and CEO, Alzheimer’s Association [Johns' testimony]
  • David Bennett, M.D., Director, Rush Alzheimer’s Disease Center, Rush University Medical Center [Bennett's testimony]
  • Michael Weiner, M.D., Director, Center for Imaging of Neurodegenerative Diseases, San Francisco Veterans Affairs Medical Center [Weiner's testimony]

10:30 - 10:45 a.m.

Morning Break 

10:45 - 11:45 p.m.

Early-Onset Alzheimer’s:  Today and Tomorrow

  • John Morris, M.D., Director and Principal Investigator of the Alzheimer’s Disease Research Center, Washington University School of Medicine [Morris' testimony]
  • Dan Marson, J.D., Ph.D., Professor of Neurology, Alzheimer’s Disease Research Center, University of Alabama at Birmingham [Marson's testimony]
  • Susan Frick, MSW, Rush Alzheimer’s Disease Center, Rush University Medical Center [Frick's testimony]

12:00 – 1:30 p.m.

Lunch Break

1:30 – 2:30 p.m.

Related Early-Onset Dementia:  Primary Progressive Aphasia

  • Marek-Marsel Mesulam, M.D., Director, Cognitive Neurology and Alzheimer's Disease Center, Northwestern University [Mesulam's testimony]
  • Sandy Weintraub, Ph.D., Director of Neuropsychology, Cognitive Neurology and Alzheimer's Disease Center, Northwestern University Feinberg School of Medicine [Weintraub's testimony]
  • Darby Morhardt, MSW, LCSW, Director of Education, Cognitive Neurology and Alzheimer's Disease Center,
  • Northwestern University Feinberg School of Medicine [Morhardt's testimony]

2:30 - 3:00 p.m.

Afternoon Break

3:00 - 4:00 p.m.

Individuals with Early-Onset Dementia and their Families

  • Jay and Laura Jones, Individual Diagnosed with Early-Onset Alzheimer’s Disease and Wife [Jones' testimony]
  • Joyce Simons, Individual Diagnosed with Mixed Dementia [Simons' testimony]
  • Mary Beth Riedner, Wife of Individual Diagnosed with Primary Progressive Aphasia [Riedner's testimony]

4:00 - 4:3 0 p.m. 

Closing Remarks

Contact the Compassionate Allowances Team